We are still working on this page and would love your input / links.

CANADA

The official website of the Canadian Pulmonary Fibrosis Foundation. www.canadianpulmonaryfibrosis.ca

The Canadian Lung Association is dedicated to doing everything possible to improve respiratory health, offering information and local resources for people with lung diseases.
www.lung.ca

L'Association Pulmonaire du Québec est un organisme sans but lucratif qui intervient dans le domaine de la santé respiratoire.                                http://www.pq.poumon.ca/

EUROPE

European IPF Network www.pulmonary-fibrosis.net/

European Respiratory Society www.ersnet.org 

Austria

Belgium

Belgische Vereniging voor Longfibrose v.z.w. www.longfibrose.org

France - Fibrose Pulmonaire Idiopathique

Le portail des maladies rares et des médicaments orphelins www.orpha.net 

Germany - Idiopathische Lungenfibrose

Ratgeber Lungenfibrose  www.lungenfibrose.org

www.lungenfibrose.de

http://lungenfibrose.jjays.info/ 

Ireland

Irish Lung Fibrosis Association www.ilfa.ie

Italia -Fibrosi Polmonare Idiopatica

Fibrosi Polmonare Idiopatica - http://www.fibrosipolmonare.it/index.html

Associazione Italiana Malattie Interstiziale o rare del Polmone www.aimip.org

Wikepedia - it.wikipedia.org/wiki/Fibrosi_polmonare_idiopatica 

Centro Universitario Interdipartimentale per le Malattie Rare del Polmone

www.malattieraredelpolmone.it

Mario Crivaro Onlus - Associazione - http://www.mariocrivaroonlus.it//default.asp?idm=9

Associazione Rete Malattie Rare - http://www.retemalattierare.it/index.php

IPF World - http://ipfworld.org/ 

Netherlands - Idiopathische Longfibrose

Belangenvereniging Longfibrosepatiënten Nederland - www.longfibrose.nl 

ILD Care Foundation - www.ildcare.nl 

Centrum voor Interstitiële Longziekten - www.longcentrum.nl

NVALT - www.nvalt.nl

United Kingdom

Pulmonary Fibrosis UK  www.pulmonaryfibrosis.org.uk

Pulmonary Fibrosis Wales pulmonaryfibrosiswales.co.uk

NHS http://www.nhs.uk/Conditions/pulmonary-fibrosis/Pages/Introduction.aspx

British Lung Foundation www.lunguk.org

Holyday Service - Oxygen www.airproducts.com/medical/uk/homecare/holiday_service.pdf

Action For Pulmonary Fibrosis www.actionpulmonaryfibrosis.org/

Spain

Asociación de Familiares y Enfermos de Fibrosis Pulmonar Idiopática www.afefpi.org/

RUSSIA AND FORMER SOVIET STATES

ASIA

Asian Pacific Society of Respirology (APSR)  http://www.apsresp.org/

China

India - 

Korea - 폐 섬유증

The Korean Academy of Tuberculosis and Respiratory Disease

www.lungkorea.org/ 

www.insunet.co.kr/linkskin/linkskin_b_med.asp?sn=2372

http://journals.lungkorea.org/upload/abstract/files/260-273.pdf 

Japan - 特発性肺線維症

The Japanese Respiratory Society  www.jrs.or.jp/home

www.shionogi.co.jp/IPF/patient/index.html

www.medgle.jp

Japanese Respiratory Society (JRS) www.jrs.or.jp/home/modules/english/index.php?content_id=1



AUSTRALIA

The Australian Lung Foundation www.lungfoundation.com.au

The Lung Institute of Western Australia  www.liwa.uwa.edu.au

The Thoracic Society of Australia and New Zealand  www.thoracic.org.au

Support groups www.mydr.com.au/search/support-group/?q=pulmonary%20fibrosis



MIDDLE EAST

AFRICA

South Africa

http://www.facebook.com/home.php?sk=group_151986361511572

MIDDLE AMERICA

SOUTH AMERICA



DISCLAIMER:The information provided in this site is for educational purposes only, and it is not intended nor implied to be a substitute for professional medical advice. Always consult your own physician or healthcare provider with any questions you may have regarding a medical condition.

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